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S 5554 — 119th Congress
Creates a new federal grant program to fund demonstration projects testing ovarian cancer awareness, hereditary risk assessment, genetic counseling, and specialty care access strategies, with preference for applicants serving rural or high-risk communities. Expands the national ovarian cancer awareness campaign to require culturally appropriate outreach targeting high-risk and underserved groups, and to promote hereditary cancer syndrome awareness, genetic counseling, and risk-reduction options including preventive surgery. Requires health insurance plans to cover genetic counseling and multi-gene panel testing for enrollees with personal or family histories of ovarian cancer or related hereditary syndromes, including coverage for repeat testing when medically necessary. Requires health insurance plans to cover evidence-based early detection and risk-reducing surgeries and interventions for people at elevated hereditary ovarian cancer risk, regardless of whether they have been diagnosed with cancer. Directs the Centers for Disease Control and Prevention (CDC), in consultation with the Health Resources and Services Administration (HRSA), to educate healthcare providers about genetic counseling guidelines, family cancer history collection, referral pathways, and the new insurance coverage protections.
Extends the new ovarian cancer genetic testing and risk-reducing intervention coverage requirements to grandfathered health plans, which are ordinarily exempt from many Affordable Care Act benefit mandates.
Expands rural health outreach grants to explicitly cover ovarian cancer prevention, diagnosis, treatment, survivorship, hereditary risk assessment, genetic counseling, and care coordination, and extends grant eligibility to Tribal communities. Adds ovarian cancer to the list of conditions addressed by the Expanding Capacity for Health Outcomes (ECHO) program, expanding the program's mandate to support provider training and care coordination for ovarian cancer.
Reauthorizes $20 million per year for fiscal years 2027 through 2031 to fund the national ovarian cancer awareness campaign and related activities, replacing the prior funding authorization level.
No possible riders have been surfaced for this bill.
The Ovarian Cancer Improving and Modernizing Prevention, Access, Care, and Testing Act (Ovarian Cancer IMPACT Act) strengthens federal efforts to prevent, detect, and treat ovarian cancer, with a focus on women who face higher risk or have less access to care. Among other elements, the bill * expands the national ovarian cancer awareness campaign to reach high-risk and underserved communities with culturally appropriate materials; * creates a new grant program to test outreach and hereditary risk assessment strategies, prioritizing rural and underserved areas; * adds ovarian cancer services to rural health outreach grants and extends eligibility to Tribal communities; * adds ovarian cancer to the Expanding Capacity for Health Outcomes (ECHO) program; * requires health insurance plans to cover genetic counseling, genetic testing, and risk-reducing interventions for people with elevated hereditary ovarian cancer risk; * and reauthorizes $20 million per year through 2031 for ovarian cancer awareness activities.
AI-generated summary, pending human review.
Full bill text rendering is coming soon.
In the meantime, read the full text on Congress.gov ↗.
| Version | Event | Date | User support | Your vote | Roll calls |
|---|---|---|---|---|---|
| Original |
Initial publication
Sep 24, 2026
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Sep 24, 2026 | No votes yet | — | — |
Creates a new federal grant program to fund demonstration projects testing ovarian cancer awareness, hereditary risk assessment, genetic counseling, and specialty care access strategies, with preference for applicants serving rural or high-risk communities. Expands the national ovarian cancer awareness campaign to require culturally appropriate outreach targeting high-risk and underserved groups, and to promote hereditary cancer syndrome awareness, genetic counseling, and risk-reduction options including preventive surgery. Requires health insurance plans to cover genetic counseling and multi-gene panel testing for enrollees with personal or family histories of ovarian cancer or related hereditary syndromes, including coverage for repeat testing when medically necessary. Requires health insurance plans to cover evidence-based early detection and risk-reducing surgeries and interventions for people at elevated hereditary ovarian cancer risk, regardless of whether they have been diagnosed with cancer. Directs the Centers for Disease Control and Prevention (CDC), in consultation with the Health Resources and Services Administration (HRSA), to educate healthcare providers about genetic counseling guidelines, family cancer history collection, referral pathways, and the new insurance coverage protections.
Core Policy Mechanism
Extends the new ovarian cancer genetic testing and risk-reducing intervention coverage requirements to grandfathered health plans, which are ordinarily exempt from many Affordable Care Act benefit mandates.
Carve-outs, Exemptions, Eligibility
Expands rural health outreach grants to explicitly cover ovarian cancer prevention, diagnosis, treatment, survivorship, hereditary risk assessment, genetic counseling, and care coordination, and extends grant eligibility to Tribal communities. Adds ovarian cancer to the list of conditions addressed by the Expanding Capacity for Health Outcomes (ECHO) program, expanding the program's mandate to support provider training and care coordination for ovarian cancer.
Core Policy Mechanism
Reauthorizes $20 million per year for fiscal years 2027 through 2031 to fund the national ovarian cancer awareness campaign and related activities, replacing the prior funding authorization level.
Funding / Appropriations
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