S 5554 — 119th Congress

Ovarian Cancer IMPACT Act

Introduced Sep 24, 2026 Open for voting
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Core Policy Mechanism Top 4

Demonstration project grant program for ovarian cancer outreach

Creates a new federal grant program to fund demonstration projects testing ovarian cancer awareness, hereditary risk assessment, genetic counseling, and specialty care access strategies, with preference for applicants serving rural or high-risk communities. Expands the national ovarian cancer awareness campaign to require culturally appropriate outreach targeting high-risk and underserved groups, and to promote hereditary cancer syndrome awareness, genetic counseling, and risk-reduction options including preventive surgery. Requires health insurance plans to cover genetic counseling and multi-gene panel testing for enrollees with personal or family histories of ovarian cancer or related hereditary syndromes, including coverage for repeat testing when medically necessary. Requires health insurance plans to cover evidence-based early detection and risk-reducing surgeries and interventions for people at elevated hereditary ovarian cancer risk, regardless of whether they have been diagnosed with cancer. Directs the Centers for Disease Control and Prevention (CDC), in consultation with the Health Resources and Services Administration (HRSA), to educate healthcare providers about genetic counseling guidelines, family cancer history collection, referral pathways, and the new insurance coverage protections.

  • Population Scope High The merged component spans insurance mandates that apply to virtually all group health plan enrollees — well over 25% of the U.S. population — plus targeted outreach to high-risk and underserved communities.
  • Budgetary Magnitude Low Grant funding draws from the $20 million annual authorization, a modest discretionary sum; insurance coverage costs fall on private plans rather than federal appropriations.
  • Legal / Regulatory Depth High Creates new statutory mandates — a federal grant program, binding insurance coverage requirements for genetic counseling and risk-reducing interventions, and new campaign obligations — each imposing substantive duties on distinct regulated actors.
  • Degree of Discretion Granted High The Secretary retains broad 'may award' discretion over grant recipients and preference criteria, while agencies exercise judgment in designing culturally appropriate materials and provider education activities.
  • Implementation & Enforcement Burden Medium Insurance coverage mandates impose recurring compliance obligations on health plan issuers, and Centers for Disease Control and Prevention (CDC) and Health Resources and Services Administration (HRSA) must stand up new provider education infrastructure, but no new civil or criminal penalty regime is created.
  • Temporal Commitment High The insurance coverage mandates and campaign requirements are permanent statutory changes with no expiry, persisting until Congress affirmatively repeals them.
No signal yet

Carve-outs, Exemptions, Eligibility Top 4

Apply ovarian cancer coverage mandates to grandfathered health plans

Extends the new ovarian cancer genetic testing and risk-reducing intervention coverage requirements to grandfathered health plans, which are ordinarily exempt from many Affordable Care Act benefit mandates.

  • Population Scope Low Grandfathered health plan enrollment has steadily declined since 2010 and now covers a small fraction of insured Americans, well under 10% of the U.S. population.
  • Budgetary Magnitude Low No federal funds are authorized or appropriated; compliance costs are borne entirely by private grandfathered plan sponsors and issuers.
  • Legal / Regulatory Depth High Removes a statutory exemption that grandfathered plans have held since the ACA's enactment, creating a new enforceable coverage obligation on a class of plans previously immune from such mandates.
  • Degree of Discretion Granted Low The provision is a mandatory 'shall apply' extension with no agency waiver authority or implementation discretion.
  • Implementation & Enforcement Burden Medium Existing ACA enforcement infrastructure must be extended to monitor and enforce compliance among grandfathered plans, adding case-by-case adjudication load without creating new enforcement machinery.
  • Temporal Commitment High The ACA amendment has no expiry and persists indefinitely unless Congress acts to restore the grandfathered plan exemption.
No signal yet

Core Policy Mechanism Top 4

Add ovarian cancer services to rural health outreach grants

Expands rural health outreach grants to explicitly cover ovarian cancer prevention, diagnosis, treatment, survivorship, hereditary risk assessment, genetic counseling, and care coordination, and extends grant eligibility to Tribal communities. Adds ovarian cancer to the list of conditions addressed by the Expanding Capacity for Health Outcomes (ECHO) program, expanding the program's mandate to support provider training and care coordination for ovarian cancer.

  • Population Scope Low Directly affects rural and Tribal community residents and the health organizations serving them — a geographically narrow subset well under 10% of the U.S. population.
  • Budgetary Magnitude Low Expands covered uses and eligible applicants within the existing rural health outreach grant program without authorizing additional funds, so budgetary impact depends on reallocation of existing appropriations.
  • Legal / Regulatory Depth Medium Amends two statutory provisions to add new covered services and eligible applicant categories, expanding program scope without creating a new mandate or enforceable private right.
  • Degree of Discretion Granted Medium The Secretary of Health and Human Services (HHS) retains discretion over which applications to fund and how to prioritize among the expanded eligible services and Tribal applicants.
  • Implementation & Enforcement Burden Low Operates through the existing rural grant administration process with no new enforcement mechanism or compliance obligation.
  • Temporal Commitment High The statutory amendments to Section 330A and the ECHO program have no expiry and remain in effect indefinitely unless Congress acts to remove them.
No signal yet

Funding / Appropriations Top 4

Authorization of $20 million per year FY2027–2031 for ovarian cancer awareness

Reauthorizes $20 million per year for fiscal years 2027 through 2031 to fund the national ovarian cancer awareness campaign and related activities, replacing the prior funding authorization level.

  • Population Scope Low Directly affects only the federal agencies and community organizations implementing ovarian cancer awareness activities, not the general public.
  • Budgetary Magnitude Low Authorizes $20 million annually for five years ($100 million total), a modest discretionary authorization with no guarantee of actual appropriation.
  • Legal / Regulatory Depth Low Replaces a prior authorization level with a new dollar amount and time period — a narrow administrative amendment that does not change substantive program law.
  • Degree of Discretion Granted Low Sets a funding ceiling but does not expand or constrain programmatic discretion beyond what the substantive campaign provisions already establish.
  • Implementation & Enforcement Burden Low No new enforcement mechanism or compliance obligation is created; the provision is a funding authorization only.
  • Temporal Commitment Low The authorization expires at the end of FY2031, a hard five-year endpoint that self-terminates without Congressional action to extend it.
No signal yet

No possible riders have been surfaced for this bill.

Summary

The Ovarian Cancer Improving and Modernizing Prevention, Access, Care, and Testing Act (Ovarian Cancer IMPACT Act) strengthens federal efforts to prevent, detect, and treat ovarian cancer, with a focus on women who face higher risk or have less access to care. Among other elements, the bill * expands the national ovarian cancer awareness campaign to reach high-risk and underserved communities with culturally appropriate materials; * creates a new grant program to test outreach and hereditary risk assessment strategies, prioritizing rural and underserved areas; * adds ovarian cancer services to rural health outreach grants and extends eligibility to Tribal communities; * adds ovarian cancer to the Expanding Capacity for Health Outcomes (ECHO) program; * requires health insurance plans to cover genetic counseling, genetic testing, and risk-reducing interventions for people with elevated hereditary ovarian cancer risk; * and reauthorizes $20 million per year through 2031 for ovarian cancer awareness activities.

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Version Event Date User support Your vote Roll calls
Original
Initial publication
Sep 24, 2026
Sep 24, 2026 No votes yet — —

Core Policy Mechanism Top 4

Demonstration project grant program for ovarian cancer outreach

Creates a new federal grant program to fund demonstration projects testing ovarian cancer awareness, hereditary risk assessment, genetic counseling, and specialty care access strategies, with preference for applicants serving rural or high-risk communities. Expands the national ovarian cancer awareness campaign to require culturally appropriate outreach targeting high-risk and underserved groups, and to promote hereditary cancer syndrome awareness, genetic counseling, and risk-reduction options including preventive surgery. Requires health insurance plans to cover genetic counseling and multi-gene panel testing for enrollees with personal or family histories of ovarian cancer or related hereditary syndromes, including coverage for repeat testing when medically necessary. Requires health insurance plans to cover evidence-based early detection and risk-reducing surgeries and interventions for people at elevated hereditary ovarian cancer risk, regardless of whether they have been diagnosed with cancer. Directs the Centers for Disease Control and Prevention (CDC), in consultation with the Health Resources and Services Administration (HRSA), to educate healthcare providers about genetic counseling guidelines, family cancer history collection, referral pathways, and the new insurance coverage protections.

  • Population Scope High The merged component spans insurance mandates that apply to virtually all group health plan enrollees — well over 25% of the U.S. population — plus targeted outreach to high-risk and underserved communities.
  • Budgetary Magnitude Low Grant funding draws from the $20 million annual authorization, a modest discretionary sum; insurance coverage costs fall on private plans rather than federal appropriations.
  • Legal / Regulatory Depth High Creates new statutory mandates — a federal grant program, binding insurance coverage requirements for genetic counseling and risk-reducing interventions, and new campaign obligations — each imposing substantive duties on distinct regulated actors.
  • Degree of Discretion Granted High The Secretary retains broad 'may award' discretion over grant recipients and preference criteria, while agencies exercise judgment in designing culturally appropriate materials and provider education activities.
  • Implementation & Enforcement Burden Medium Insurance coverage mandates impose recurring compliance obligations on health plan issuers, and Centers for Disease Control and Prevention (CDC) and Health Resources and Services Administration (HRSA) must stand up new provider education infrastructure, but no new civil or criminal penalty regime is created.
  • Temporal Commitment High The insurance coverage mandates and campaign requirements are permanent statutory changes with no expiry, persisting until Congress affirmatively repeals them.
No signal yet

Core Policy Mechanism

Demonstration project grant program for ovarian cancer outreach

Carve-outs, Exemptions, Eligibility Top 4

Apply ovarian cancer coverage mandates to grandfathered health plans

Extends the new ovarian cancer genetic testing and risk-reducing intervention coverage requirements to grandfathered health plans, which are ordinarily exempt from many Affordable Care Act benefit mandates.

  • Population Scope Low Grandfathered health plan enrollment has steadily declined since 2010 and now covers a small fraction of insured Americans, well under 10% of the U.S. population.
  • Budgetary Magnitude Low No federal funds are authorized or appropriated; compliance costs are borne entirely by private grandfathered plan sponsors and issuers.
  • Legal / Regulatory Depth High Removes a statutory exemption that grandfathered plans have held since the ACA's enactment, creating a new enforceable coverage obligation on a class of plans previously immune from such mandates.
  • Degree of Discretion Granted Low The provision is a mandatory 'shall apply' extension with no agency waiver authority or implementation discretion.
  • Implementation & Enforcement Burden Medium Existing ACA enforcement infrastructure must be extended to monitor and enforce compliance among grandfathered plans, adding case-by-case adjudication load without creating new enforcement machinery.
  • Temporal Commitment High The ACA amendment has no expiry and persists indefinitely unless Congress acts to restore the grandfathered plan exemption.
No signal yet

Carve-outs, Exemptions, Eligibility

Apply ovarian cancer coverage mandates to grandfathered health plans

Core Policy Mechanism Top 4

Add ovarian cancer services to rural health outreach grants

Expands rural health outreach grants to explicitly cover ovarian cancer prevention, diagnosis, treatment, survivorship, hereditary risk assessment, genetic counseling, and care coordination, and extends grant eligibility to Tribal communities. Adds ovarian cancer to the list of conditions addressed by the Expanding Capacity for Health Outcomes (ECHO) program, expanding the program's mandate to support provider training and care coordination for ovarian cancer.

  • Population Scope Low Directly affects rural and Tribal community residents and the health organizations serving them — a geographically narrow subset well under 10% of the U.S. population.
  • Budgetary Magnitude Low Expands covered uses and eligible applicants within the existing rural health outreach grant program without authorizing additional funds, so budgetary impact depends on reallocation of existing appropriations.
  • Legal / Regulatory Depth Medium Amends two statutory provisions to add new covered services and eligible applicant categories, expanding program scope without creating a new mandate or enforceable private right.
  • Degree of Discretion Granted Medium The Secretary of Health and Human Services (HHS) retains discretion over which applications to fund and how to prioritize among the expanded eligible services and Tribal applicants.
  • Implementation & Enforcement Burden Low Operates through the existing rural grant administration process with no new enforcement mechanism or compliance obligation.
  • Temporal Commitment High The statutory amendments to Section 330A and the ECHO program have no expiry and remain in effect indefinitely unless Congress acts to remove them.
No signal yet

Core Policy Mechanism

Add ovarian cancer services to rural health outreach grants

Funding / Appropriations Top 4

Authorization of $20 million per year FY2027–2031 for ovarian cancer awareness

Reauthorizes $20 million per year for fiscal years 2027 through 2031 to fund the national ovarian cancer awareness campaign and related activities, replacing the prior funding authorization level.

  • Population Scope Low Directly affects only the federal agencies and community organizations implementing ovarian cancer awareness activities, not the general public.
  • Budgetary Magnitude Low Authorizes $20 million annually for five years ($100 million total), a modest discretionary authorization with no guarantee of actual appropriation.
  • Legal / Regulatory Depth Low Replaces a prior authorization level with a new dollar amount and time period — a narrow administrative amendment that does not change substantive program law.
  • Degree of Discretion Granted Low Sets a funding ceiling but does not expand or constrain programmatic discretion beyond what the substantive campaign provisions already establish.
  • Implementation & Enforcement Burden Low No new enforcement mechanism or compliance obligation is created; the provision is a funding authorization only.
  • Temporal Commitment Low The authorization expires at the end of FY2031, a hard five-year endpoint that self-terminates without Congressional action to extend it.
No signal yet

Funding / Appropriations

Authorization of $20 million per year FY2027–2031 for ovarian cancer awareness